Dear Diagnosis, It’s been a year.

Dear Diagnosis, …it’s been a year. I’d love for this to be a parting letter, but unfortunately we are stuck with you. So, instead I’ll reflect on our year together as much as I can. And I say our, because you have affected all of us in some way. I’ve felt this day approaching forContinue reading “Dear Diagnosis, It’s been a year.”

Blessed, Not Balanced

I am so blessed, but I also I believe it’s okay to say “it’s hard” and still be grateful and acknowledge that.  I’ve learned a lot in less than a year since Colbie’s diagnosis. A lot about genetics, rare diseases, disabilities, therapies, neurology, insurance, etc. More than I ever thought I would need to. Honestly,Continue reading “Blessed, Not Balanced”