• Dear Diagnosis, It’s been a year.October 5, 2021
  Dear Diagnosis, …it’s been a year. I’d love for this to be a parting letter, but unfortunately we are stuck with you. So, instead I’ll reflect on our year together as much as I can. And I say our, because you have affected all of us in some way. I’ve felt this day approaching forContinue reading “Dear Diagnosis, It’s been a year.”
• Blessed, Not BalancedJuly 19, 2021
  I am so blessed, but I also I believe it’s okay to say “it’s hard” and still be grateful and acknowledge that.  I’ve learned a lot in less than a year since Colbie’s diagnosis. A lot about genetics, rare diseases, disabilities, therapies, neurology, insurance, etc. More than I ever thought I would need to. Honestly,Continue reading “Blessed, Not Balanced”
• My Colbie Lies Over The OceanJuly 13, 2021
  When Colbie was an infant all 6 of us would sing our own rendition of “My Bonnie Lies Over the Ocean” with Colbie’s name inserted. “Bring back, bring back, oh bring back my Colbie to me, to me…” It was simple and fun, but I can’t sing this song anymore without getting teary eyed. WhoContinue reading “My Colbie Lies Over The Ocean”

About Colbie

Our Girl

Born in April of 2019, Colbie has been the brightest of lights in all of our lives. She is happy, determined and keeps us all smiling and laughing often. Colbie LOVES music, water, and everything possible about being outside. Most of all she adores her 4 older siblings and they feel the same way about her. We hope Care for Colbie helps raise awareness & funding for Kif1A research, helps other parents, but also this is just a place for us to keep our friends and family updated as we face whatever is to come for our sweet girl. We will NEVER stop cheering her on.

https://www.youtube.com/channel/UCUYPKe1rDwJaP6LhMleLz4A