Colbie’s Lullaby

They have a shared love of music. Dominic & Colbie 2020

We often joke that Colbie likes her big brother Dominic more than any of us, but she has a way of making each of us feel special. Either way there is no doubt that he adores her just as much. The other day, Dominic said to me, “Mom, I didn’t cry when you first told us about Colbie’s disorder, because…How cool would it be even if she does have to be in a wheel chair or has other challenges, but does amazing stuff anyhow?!” I choked back some tears and told him that I too believe she will do some amazing stuff. He also told me that while he first cried when he found out she was going to be a girl, that if he had known how great she would be, he never would have and would even be open to another baby sister (not happening). He asks us daily how she can be so cute, always makes her laugh, and is excited to see her whenever he gets home. He is 10 years older than her and I worried that they wouldn’t have a special bond, but I couldn’t have been more wrong. I’m so proud of what a great big brother he is!

Thank you again to all who donated towards the KIF1A research. We are blown away and forever grateful for all of your support! Dominic agreed to creating a song on the piano for Colbie if we reached $500 for our KIF1A Super Hero Challenge for a Cure and we present you with “Colbie’s Lullaby”:

Colbie’s Lullaby by Dominic

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